Tuesday, February 19, 2013


It has been such a long time!!!  This is a long post, but please make it to the end (or skip to the end) because there is something so dear to my heart that I am posting about.  Things are going well with Dominic, very well in fact!  Some highlights for Dominic are:

Dominic is completely off of the oxy-codene as of two days ago.  We had one final day of crabbiness and reaction from coming off of the medication and now we are enjoying the Dominic we always knew!  He again is filled with so much joy and smiles, it makes me tear up to even be sharing this with you because there were times when I wasn't sure I would ever be able to say this, I wasn't sure if we had somehow lost our little fellow through the surgery.  Thank you God for the gift of completely giving us our son back!

We have not had to monitor his sodium levels closely, or any other levels for that matter, he has been stable for so long.  We will have to check them every so often, but it is not the situation we had when he first came home, making life a whole lot easier.

Dominic is sleeping through the night!!  There are a few strange nights that he stays up all night, but most nights he is going down for 8 hours straight!  This momma needed this!

Dominic is taking a whole lot of his food by mouth and hardly anything by g-tube (stomache tube).  He even takes fluids with a syringe as he would a bottle.  I don't think we are completely out of the woods yet with this one as he tires from taking it from the syringe before he takes in the needed amount, but nonetheless this is great for his developement and muscles in his mouth.  He succeeded in pulling out his g-tube last week which required us to be in hospital for the day (they wanted to establish it was in it's proper place)  Now I will be able to change the tubes on my own in the future if this happens.

We saw the surgeons for the next surgery which is due for July.  Dominic will have his soft palat and hard palat fixed in one surgery when he is 13 months old.  This surgery will be done by a doctor in Chicago. This surgery is very important so he will be able to talk, one cannot make words without a palat, the air rushes through and out the nose!  In all honesty, I am not ready to think about this next step, I feel as if I am just starting to come up for air and am enjoying the normalcey of every day life.  Thank goodness this surgery is not as dangerous as the last one, but it is still major surgery. 

With everything going so well, I have had a chance to reflect on all of you.  I know I have said it many times, but please, I hope you know that your helping our family out in the way you did has changed my life.  I am hoping that you all know how grateful I am for all of your gifts of love!  I have started sending out "thank yous" but please know that if you haven't gotten one yet, your gift was and is greatly appreciated.  It is taking me more time than I had wanted to send out my thank yous, but that does not mean we did not appreciate what you have done for us!  Here are some pictures of Dominic taken today! 























And now I am posting about something so dear to my heart, please open your hearts to what I am going to show you, open your hearts to a helpless little sweetheart that has completely captured my heart.  It is not just this little sweetheart but the plight of many little children that I want to speak about, but right now I want to introduce you to a little fellow named Dong.  Dong is from China and was born with the same type of clefting my son was born with, only more severe, clefting to the side of the face.  While my son was born into a loving family and support, Dong was dropped off at an orphanage where they take care of the children that are dropped off because of disfigurement, disability, or medical needs.  This is something that happens all over the world, these little ones are abandoned.  Lucky for Dong, he was dropped off at an orphanage run by the Little Flowers Project http://www.littleflowerprojects.org/
a wonderful ministry that I have been following for over a year.   I saw this little one was born and my heart just melted thinking, "who will adopt this little guy", my heart just broke knowing I would love to be able to help him.  I had moved on, figuring I couldn't do anything for him but pray.  I was always looking out for updates on him and recently I saw that he is in Texas getting his surgery by a surgeon there that is helping the Little Flowers Project.  I was so excited to see this for him!!  Imagine my surprise when the other day I received an e-mail from a friend back in MN sending along a picture of Dong with his chaperone ( his chaperone went to China to bring him to the U.S.), she said the chaperone had become aware of Dominic's story and wanted me to have a picture of Dong.  When I contacted her, I told her of my surprise and she responded saying she was just as surprised when this friend had sent her the link to Dominic's story, as she had just read about it in China and she had read the blog.  WOW!  A coincidence?  I think not!!


I am asking for prayers for Dong, I am asking that you put him in your heart like you did Dominic.  He is a helpless, little baby that needs love just like everyone else, and he deserves it.  I love him already and I have never met him.  I am going to ask that you consider bringing this little soul into your lives.   If you have enough love, that is all you will need!  Is this something you are called to do, be blessed by adopting this dear child?  I am going to post a picture of him with his chaperone, Shannon.  After that is a link to a very important trailer that addresses this issue of children with special needs being viewed as useless.  It is called the "Drop Box" and lest we become judgemental about other countries' ways of dealing with their unwanted children, we must remember, in the U.S., most of our disabled children never even make it into a "Drop Box".  This picture is so small I am giving you a link to the blog with many pictures of him.  http://littleflowerprojects.blogspot.com/2013/02/headed-to-dallas.html



and here is the link to the Drop Box :  http://www.dropbox-movie.com/trailer.html

Blessings!!

7 comments:

  1. What a beautiful little boy Dominic is! I love your pictures, your family looks so full of love!

    I had recently heard about the Drop Box. My husband and I have been married only a year and a half but I fervently hope that someday we will be able to adopt a little one like Dong.

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  2. Dominic looks so happy!! I love his little duck fuzz hair! Thank you for sharing them, I'm do happy he's doing so well! And thank you for sharing Dong's story. I live in Dallas - do you think he would like visitors/would be able to see anyone? My 2 yr old would love to meet him.

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  3. Dominic is looking great! Love the pictues! Little Dong is adorable. I hope that a family is able to get him soon!

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  4. Great to see Dominic and read that he's off his oxycodeine (or however it's spelled).
    May God bring parents to little Dong.

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  5. Thank you for the update on Dominic! It's so great to see him smiling, and to hear he's more and more himself. :)
    I have been following the updates on little Dong, as much as they post on Little Flowers fb. Do you know if/how we can find out more about hoe he's doing? Has he already had his surgery? I fervently hope to adopt a little boy from his country one day, if it be God's will. Praying for him!

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  6. I knew it! I had great Hope your precious Dominic would be back. It's those nasty drugs, man. They make anyone crabby. You are now in the select group of post-NICU parents who can tell their kid with absolute certainty "Don't do drugs, son. We have seen you on oxy and it results were NOT pretty!" (hee hee) You got to grab your laughs while you can on this roller coaster ride.

    Dominic looks AMAZING!!! What a happy, jolly boy. Hope you get lots of rest. It takes a long time to come down off the intensity of hospital life. Keep taking life slow and easy!

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