It has been such a long time!!! This is a long post, but please make it to the end (or skip to the end) because there is something so dear to my heart that I am posting about. Things are going well with Dominic, very well in fact! Some highlights for Dominic are:
Dominic is completely off of the oxy-codene as of two days ago. We had one final day of crabbiness and reaction from coming off of the medication and now we are enjoying the Dominic we always knew! He again is filled with so much joy and smiles, it makes me tear up to even be sharing this with you because there were times when I wasn't sure I would ever be able to say this, I wasn't sure if we had somehow lost our little fellow through the surgery. Thank you God for the gift of completely giving us our son back!
We have not had to monitor his sodium levels closely, or any other levels for that matter, he has been stable for so long. We will have to check them every so often, but it is not the situation we had when he first came home, making life a whole lot easier.
Dominic is sleeping through the night!! There are a few strange nights that he stays up all night, but most nights he is going down for 8 hours straight! This momma needed this!
Dominic is taking a whole lot of his food by mouth and hardly anything by g-tube (stomache tube). He even takes fluids with a syringe as he would a bottle. I don't think we are completely out of the woods yet with this one as he tires from taking it from the syringe before he takes in the needed amount, but nonetheless this is great for his developement and muscles in his mouth. He succeeded in pulling out his g-tube last week which required us to be in hospital for the day (they wanted to establish it was in it's proper place) Now I will be able to change the tubes on my own in the future if this happens.
We saw the surgeons for the next surgery which is due for July. Dominic will have his soft palat and hard palat fixed in one surgery when he is 13 months old. This surgery will be done by a doctor in Chicago. This surgery is very important so he will be able to talk, one cannot make words without a palat, the air rushes through and out the nose! In all honesty, I am not ready to think about this next step, I feel as if I am just starting to come up for air and am enjoying the normalcey of every day life. Thank goodness this surgery is not as dangerous as the last one, but it is still major surgery.
With everything going so well, I have had a chance to reflect on all of you. I know I have said it many times, but please, I hope you know that your helping our family out in the way you did has changed my life. I am hoping that you all know how grateful I am for all of your gifts of love! I have started sending out "thank yous" but please know that if you haven't gotten one yet, your gift was and is greatly appreciated. It is taking me more time than I had wanted to send out my thank yous, but that does not mean we did not appreciate what you have done for us! Here are some pictures of Dominic taken today!
And now I am posting about something so dear to my heart, please open your hearts to what I am going to show you, open your hearts to a helpless little sweetheart that has completely captured my heart. It is not just this little sweetheart but the plight of many little children that I want to speak about, but right now I want to introduce you to a little fellow named Dong. Dong is from China and was born with the same type of clefting my son was born with, only more severe, clefting to the side of the face. While my son was born into a loving family and support, Dong was dropped off at an orphanage where they take care of the children that are dropped off because of disfigurement, disability, or medical needs. This is something that happens all over the world, these little ones are abandoned. Lucky for Dong, he was dropped off at an orphanage run by the Little Flowers Project http://www.littleflowerprojects.org/
a wonderful ministry that I have been following for over a year. I saw this little one was born and my heart just melted thinking, "who will adopt this little guy", my heart just broke knowing I would love to be able to help him. I had moved on, figuring I couldn't do anything for him but pray. I was always looking out for updates on him and recently I saw that he is in Texas getting his surgery by a surgeon there that is helping the Little Flowers Project. I was so excited to see this for him!! Imagine my surprise when the other day I received an e-mail from a friend back in MN sending along a picture of Dong with his chaperone ( his chaperone went to China to bring him to the U.S.), she said the chaperone had become aware of Dominic's story and wanted me to have a picture of Dong. When I contacted her, I told her of my surprise and she responded saying she was just as surprised when this friend had sent her the link to Dominic's story, as she had just read about it in China and she had read the blog. WOW! A coincidence? I think not!!
and here is the link to the Drop Box : http://www.dropbox-movie.com/trailer.html